EXPRESSION IX (9)

NOGGO S20 / ENGOTgyn4 - EXPRESSION IX (9)

Long-term survival with gynecological cancer / Langzeitüberlebende mit gynäkologischen Krebserrankungen

Based on the experience with Expression VI – Carolin meets HANNA, a survey focused on long-term survivors with ovarian cancer, we would like to conduct the same survey with slightly modified questions with survivors of other gynecologic cancers.

What is the aim of the survey?

With the “Expression IX” survey, we want to expand the patient collective of long-term survivors and now want to include long-term survival with all gynecological tumors. As part of the study, we want to survey patients worldwide with cervical carcinoma, endometrial carcinoma and other rare gynecological tumors (e.g. gynecological sarcomas in the uterus or germline tumors) using an anonymized questionnaire and via the Internet. The aim of the survey is to identify potential factors that have a positive influence on the course of the disease and life expectancy with these tumors.

What is the survey process?

You will receive various questionnaires to complete. By completing the questionnaire or answering the questions, you agree to participate in the survey and that you are fully informed about this survey and understand the objectives of this survey. We have deliberately limited the number of questions to keep the effort for you as low as possible. To participate in this survey, we do not require any information such as your name, address or date of birth. The survey is anonymous. Completing the questionnaire will take approximately 1 hour of your time. Please return the completed questionnaire to the person who sent you the survey or send it to the address given in the questionnaire. It is also possible to participate via the link below.

Are there any risks?

No, it’s a survey.

Participation requirements

Women aged 18 and over can take part in this study:

  • with a diagnosis of gynecological cancer dating back five years or more

Where can I take part in the study?

You can take part in the survey via this link or via the participating centers.