NEW: Instead of the previously required period of eight years after initial diagnosis, we would now like to invite all long-term survivors of at least five years after initial diagnosis to take part in this survey.

Ovarian, fallopian tube and peritoneal cancer is a very serious tumor disease. Many women often die from it in the first few years. You have been successfully fighting ovarian cancer for more than five years now. Unfortunately, most patients have a much worse course of the disease than you. Patients who were diagnosed more than 5 years ago are called “long-term survivors”. As very little research has been carried out on these patients to date, the survey sheds light on what makes this rare patient group special. So far, there is only speculation as to what the different courses of the disease might be due to.

What are the particularities of life and lifestyle that have made women live with ovarian cancer for so many years? For example, non-smoking, a balanced diet and immunological factors are discussed. The study examines lifestyle, living conditions, psychological factors and social conditions.

What is the aim of the survey?

We would like to learn from you as part of this survey “Expression VI – Long-term survival with ovarian cancer” – with the aim of giving you direct feedback and being able to make better recommendations to other patients regarding modifiable factors such as diet and exercise.

What is the survey procedure?

By completing the questionnaire or answering the questions, you agree to participate in the survey and that you are fully informed about this survey and understand the objectives of this survey. We have deliberately limited the number of questions in order to keep the effort for you as low as possible. To participate in this survey, we do not require any information such as your name, address or date of birth. The survey is anonymous. Filling out the questionnaire will take about 20-30 minutes of your time. Please return the completed questionnaire to the person who gave you the survey or send it to the address below.

Are there any risks?

No, it’s a survey.

Participation requirements

Women aged 18 and over can take part in this study:

• Patients who were born at least were diagnosed with ovarian cancer at the age of 5
• Initial treatment, recurrences possible